Sunday, November 9, 2014

A Helmet for Wesley

After all our repositioning efforts it looks like Wesley is still headed for a helmet. His physical therapist for his Torticollis told us a couple weeks ago that at this point his head shape will not change without help. So we called the doctor back that originally told us to wait 3 months and see if we could fix it with repositioning. The doctor agreed that it was time to do helmet therapy. So we made an appointment at the orthotic supply store to have him scanned and fit for a helmet. His initial scan went great and Wes did amazing. It was just a little stocking on his head and his head was scanned with what looked like a hand scanner from the grocery.
We were told that his plagiocephaly was moderate to severe according to the scan. (I found this info online - There are different degrees of plagiocephaly. A perfectly round headshape is 0 mm (zero millimeters of difference) which is probably pretty rare! “Normal” heads measure 0-3 mm of difference. Mild plagiocephaly is considered 4-6 mm and most people don’t start treatment at this level of variance. 7-11 mm is considered moderate plagiocephaly and severe plagiocephaly is 12 mm and up. )

Wes was a 13mm. So after the scan we went to make our next appointment to pick up the helmet and we were told we should wait for a pre-authorization for our insurance before the helmet was ordered. It can be tricky waiting on insurance since the scans are only good for two weeks (since babies heads grow so fast). So we left and we waited. Almost two weeks went by and I got a call and was told insurance would not cover the helmet. Honestly I wasn't surprised. Don't even get me started on how useless insurance seems at times. So instead of us picking up his helmet tomorrow we have to go for a rescan and then wait another two weeks for his helmet to come in. Oh and yea, we have to pay for it all out of pocket. Roughly $1500. There's no question about getting it, it's necessary so we will do what we need to do. Doesn't mean I can't be a little pissed about it though.
We are looking into some other options that could possibly help us pay for it so stay tuned for that. I was THRILLED last month when I applied for assistance through the hospital where I had the twins and they wrote off nearly $5000 in medical bills we had. So I'm all about asking for help when we need it.
Anyway, other than the helmet drama little dude is doing great. He's been doing physical therapy for 3 weeks now and I see signs of improvement. We do some stretches with him at home as well. He's sitting up like a champ!
 I was telling Todd tonight how much I love that he's a snuggle bug. Most of the time Audrey is all go go go and won't stop moving but Mr. Wesley with just snuggle onto your shoulder or into your neck and he just melts into you. And I love love love it. Right now he's just a heap of love and I can't get enough.

No comments: